Malaysia Lysosomal Diseases Association (MLDA)
OVERVIEW & CHALLENGES FACED
The Malaysia Lysosomal Diseases Association (MLDA) is a non-profit organization which advocates for patient’s rights to a sustainable health care and support system. It raises the awareness of the general public about the life threatening Lysosomal Storage Diseases. There are about 50 different types of LSD diseases which mostly affect children who often die at a young and unpredictable age, many within a few months or years of birth.
Due to the complexity of LSD, patients will require care provided by health care professionals from multiple disciplines and support from various agencies. Access to such medical care and services are hard to come for many LSD patients, causing undue suffering and despair.
PROJECTS WITH MIRM
- Malaysia Lysosomal Disease Association (MLDA) Charity Dinner
- Spin4FunD Challenge 2016