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Malaysian Rare Disorders Society
OVERVIEW & CHALLENGES FACED

Malaysian Rare Disorders Society (MRDS) was formed in 2004, with the help and guidance of the Genetic Unit, Department of Paediatrics, University Malaya Medical Centre.

MRDS is a voluntary organisation set-up to represent and look out for the welfare of individuals including their families that are affected by rare disorders.

Objective

  • To support and provide practical aid to individuals and families affected with rare disorders
  • To increase awareness on rare disorders through providing information on rare disorders and educate individuals, families, medical professionals, schools, organisations and to the general public.
  • To establish a network between individuals and families with rare disorders with relevant organisations, professionals, education and intervention centers.
  • To collaborate with organisations that has the potential to affirm, prevent, improve treatment and increase the quality of life of individuals affected with rare disorders
PROJECTS WITH MIRM
  • 2018 #1 Youth Advocates Lab